tag:blogger.com,1999:blog-8750953410426186176.post4106162732361957129..comments2020-09-20T23:23:05.584-04:00Comments on Life According to Liz: Rare Disease Day 2012Lizhttp://www.blogger.com/profile/13893626673644280780noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8750953410426186176.post-85000409768030397602012-03-07T15:12:54.147-05:002012-03-07T15:12:54.147-05:00Thanks! Great video!!Thanks! Great video!!Lizhttps://www.blogger.com/profile/13893626673644280780noreply@blogger.comtag:blogger.com,1999:blog-8750953410426186176.post-60935270282222009952012-03-07T15:12:26.058-05:002012-03-07T15:12:26.058-05:00Thanks Stef!!Thanks Stef!!Lizhttps://www.blogger.com/profile/13893626673644280780noreply@blogger.comtag:blogger.com,1999:blog-8750953410426186176.post-28192528898065452202012-03-07T15:12:03.293-05:002012-03-07T15:12:03.293-05:00I agree with you!! I can work, just unemployed cu...I agree with you!! I can work, just unemployed currently. Even then, the job hunt is incredibly daunting because I don't want to make any promises I can't keep. College was easier in one regard because it's 24/7, not 9-5. I could do the work when I could and choose my schedule.Lizhttps://www.blogger.com/profile/13893626673644280780noreply@blogger.comtag:blogger.com,1999:blog-8750953410426186176.post-40410621937597424032012-03-04T10:50:49.385-05:002012-03-04T10:50:49.385-05:00http://www.youtube.com/watch?v=nZntJK3b3KA&fea...http://www.youtube.com/watch?v=nZntJK3b3KA&feature=youtu.be keep on fighting liz xWww.lozsmedicsljourney.blogspot.co.ukhttps://www.blogger.com/profile/04054921630845997488noreply@blogger.comtag:blogger.com,1999:blog-8750953410426186176.post-13989645417441185252012-03-03T18:44:08.230-05:002012-03-03T18:44:08.230-05:00Loved the post....as always Liz!!!! ;)Loved the post....as always Liz!!!! ;)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8750953410426186176.post-65086887339697423032012-03-01T15:30:20.203-05:002012-03-01T15:30:20.203-05:00I totally agree with you sister! think docs should...I totally agree with you sister! think docs should be more informative with mito conditons instead of being confused. and of course my mito condion is invisable most people say i look well and should be out working!! how do they know what my life is like with PEG tube and cochlear implant (also deafness is an invisable type) but i hear with my cochlear implant well but we all have our good days and bad days. there should be more awareness to doctors GPs and hospitals because it affects just a few people.<br />i have met many a doctor where i have to explain my mito conditon to them<br />great blog liz xWww.lozsmedicsljourney.blogspot.co.ukhttps://www.blogger.com/profile/04054921630845997488noreply@blogger.com